Validation of the angioedema control test (AECT) – a patient reported outcome instrument for assessing angioedema control

by admin | Nov 8, 2020

Recurrent angioedema (RA) is an important clinical problem in routine care and emergency medicine. As of recently, the only validated tools to specifically assess disease status in patients with RA were diary-type activity assessments and angioedema-related...

Development and content validity testing of a patient-reported outcomes questionnaire for the assessment of hereditary angioedema in observational studies

by mm-red | Jul 30, 2020

Background: Hereditary Angioedema (HAE), a rare genetic disease, manifests as intermittent, painful attacks of angioedema. Attacks vary in frequency and severity and include skin, abdominal and life-threatening laryngeal swellings.This study aimed to develop a patient...

Development and content validity testing of a patient-reported outcomes questionnaire for the assessment of hereditary angioedema in observational studies

by mm-red | Jul 29, 2020

Background: Hereditary Angioedema (HAE), a rare genetic disease, manifests as intermittent, painful attacks of angioedema. Attacks vary in frequency and severity and include skin, abdominal and life-threatening laryngeal swellings.This study aimed to develop a patient...

Development and validation of the cholinergic urticaria quality of life questionnaire: CholU-QoL

by mm-red | Jul 28, 2020

Background: Cholinergic urticaria (CholU), a common form of chronic inducible urticaria, is characterized by itchy weals that occur in response to physical exercise or passive warming. CholU patients frequently exhibit a high burden of disease. As ofyet, no specific...

Clinical measures of chronic urticaria

by mm-red | Jun 23, 2020