Publications

Publications, Books, Book Chapters and Reviews by Prof. Marcus Maurer, MD

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Disease severity, activity, impact, and control and how to assess them in patients with hereditary angioedema

Filename 128. Bygum et al., Disease act. HAE,Front.2017.pdf
Filesize 136 KB
Version r.128
Date added June 21, 2020
Downloaded 1 time
Category Reviews
Tags activity, burden, control, Hereditary Angioedema, impact, Patient-reported outcomes, Quality of life, severity
Authors Bygum, A., Busse, P., Caballero, T., and Maurer, M.
Citation Bygum, A., Busse, P., Caballero, T., and Maurer, M.: Disease severity, activity, impact, and control and how to assess them in patients with hereditary angioedema. Front. Med. 2017: 4; 212.
Corresponding authors Maurer, M.
DocNum r.128
DocType PDF
Edition; Page 4; 212.
IF 2.03
Publisher Front. Med
ReleaseDate 2017

Hereditary angioedema (HAE) is a group of rare, potentially life-threatening, and fre- quently debilitating diseases characterized by recurrent, and often with an unpredictable onset, of swelling attacks. HAE is heterogeneous, with considerable differences between its subtypes, patients, and even within the same patient over time. During the past few years, several new on demand and prophylactic therapies have become available for HAE, allowing for individualized treatment. Therefore, to optimize HAE management, it is important to determine in all patients, the severity of their attacks, their disease activity, its therapeutic control, and its impact on their quality of life. In this manuscript, we review the existing tools to assess these aspects of HAE management, many of which are patient-reported outcome instruments. Also, we outline the current gaps of knowledge and what tools are still missing to allow for a comprehensive assessment of all patients with HAE including children.

(Last update: 11.2020)

Number of publications (original work and reviews) in peer-reviewed journals: 582
Number of original publications in peer-reviewed journals: 418
Number of reviews in peer-reviewed journals: 164
Cumulative IF of publications (original work & reviews) in peer-reviewed journals: 3203,30
Cumulative IF for original publications in peer-reviewed journals: 2563,44
Cumulative IF for reviews in peer-reviewed journals: 639,86
Citations, Hirsch index: (view on Google Scholar) 43911, 103