Publications
Publications, Books, Book Chapters and Reviews by Prof. Marcus Maurer, MD
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Improvement in diagnostic delays over time in patients with hereditary angioedema: findings from the icatibant outcome survey
| Filename | 328. Zanichelli et al., Improv. diagn. HAE, IOS, ClinTransAll 2018.pdf |
| Filesize | 835.64 KB |
| Version | o.328 |
| Date added | June 13, 2020 |
| Downloaded | 3 times |
| Category | Original Work |
| Tags | C1-INH-HAE, Delay in diagnosis, diagnosis, HAE, Hereditary Angioedema |
| Authors | Zanichelli, A., Magerl, M., Longhurst, H. J., Aberer, W., Caballero, T., Bouillet, L., Bygum, A., Grumach, A. S., Botha, J., Andresen, I., and Maurer, M. |
| Citation | Zanichelli, A., Magerl, M., Longhurst, H. J., Aberer, W., Caballero, T., Bouillet, L., Bygum, A., Grumach, A. S., Botha, J., Andresen, I., and Maurer, M.: Improvement in diagnostic delays over time in patients with hereditary angioedema: findings from the icatibant outcome survey. Clin. Transl. Allergy 2018: 8; 42 eCollection. |
| Corresponding authors | Zanichelli, A. |
| DocNum | O.328 |
| DocType | |
| Edition; Page | 8; 42 eCollection |
| IF | 4.23 |
| Publisher | Clin. Transl. Allergy |
| ReleaseDate | 2018 |
The objective of this analysis was to evaluate the change over time in age at rst symptoms, age at diagnosis, and delay in diagnosis using data from the Icatibant Outcome Survey (IOS). Patients with a diagnosis of C1-INH-HAE who were born before the year 1990 and who were diagnosed before they reached 25 years of age were included in the analysis. Both age at diagnosis and delay in diagnosis of C1-INH-HAE appear to decline with later decade of birth, despite wide variation across the countries assessed, suggesting that improved disease awareness causes increased rates of earlier diagnosis over time. Our ndings demonstrate that some patients are still experiencing long delays to diagnosis, indicating an ongoing need for improved disease awareness.
(Last update: 12.2023)
| Number of original publications in peer-reviewed journals: | 580 |
| Number of reviews in peer-reviewed journals: | 210 |
| Number of publications (original work and reviews) in peer-reviewed journals: | 790 |
| Cumulative IF for original publications in peer-reviewed journals: | 4196.39 |
| Cumulative IF for reviews in peer-reviewed journals: | 1409.32 |
| Cumulative IF of publications (original work & reviews) in peer-reviewed journals: | 5605.71 |
| Total number of citations: 36,836, h-index: 99 (Web of Science December 2023) | 36836 |
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